Writing with Chronic Illness

This week I came right up against a wall. Writing can be tough for anybody. Writing a book is even harder. But attempting to write a book with chronic illness? Even Flannery O’Connor said screw it when she was diagnosed with lupus and had to move back home, trading her fabulous life among Manhattan’s literatiContinue reading “Writing with Chronic Illness”

The Four Stages of Migraine

At the age of 31, I learned that the body is irrevocably tied to others. After violence from two young men, my health rapidly deteriorated. Migraines became more frequent and eventually chronic. Within three years, I had become too disabled to work. Our culture tells us that health and weight signal personal virtue. That “willContinue reading “The Four Stages of Migraine”

Gratitude

It’s been two weeks since the MRI. One and a half weeks since the results: Normal. Normal. Unremarkable. Normal. No edemas. No infarcts. No tumors. My brain is clear. No cancer. Nothing structural that would cause these symptoms. They are exclusively electrochemical, and they will not kill me. I had expected good results would leadContinue reading “Gratitude”

Life and Death

I apologize for being MIA the last week and a half. Things have been happening. Those of you who have been following me for a while know that I have chronic migraines. I developed migraines shortly after the first assault I survived at age 12, and they became chronic shortly after the last assault atContinue reading “Life and Death”

Thailand

Top had booked his first visit home in three years, and I went with him. I had learned so much living above the Thai restaurant. And yet I had learned nothing at all. Thailand, I thought. Asia.  More than 9,000 miles away.  I expected freedom. I expected healing. For my relationship with Top. For myself.Continue reading “Thailand”

Learning That Disability Isn’t Your Fault

“So I’m going to keep getting better, right?” I asked. My neurologist looked at me for a moment. “Probably not,” he said. “Migraines are an oversensitivity of the brain. There’s no cure for that. It will fluctuate. Some months you may have no symptoms, and then it will be very bad for several weeks because youContinue reading “Learning That Disability Isn’t Your Fault”

How Chronic Illness Made Me a Champion Worrywart

I worry about everything. Barometric pressure. Fluorescent lights. Hormones. My bedtime. You name it, I can fret over it. So move over, Muhammad Ali: I’m the Greatest! I can worry anyone into the ground. Try me. Here is a short list of things that worry me on a regular basis. Each one has knocked meContinue reading “How Chronic Illness Made Me a Champion Worrywart”

High Noon at the Vertigo Saloon

Step right up, folks! Step right up! Ladies and gentlemen, prepare to be dazzled! Prepare to be amazed! Those lucky few selected for this experiment will soon find the ground shifting beneath their feet. The very floor beneath you will bounce like a ship on choppy seas. Even when you sit perfectly still, the worldContinue reading “High Noon at the Vertigo Saloon”