My Life Is Out of Control, So I’m Trying Goals

Some people scoff at goal-setting. They think it’s new age-y. Or they think it’s fear-driven. Or they think what’s the point? Life isn’t in our control anyway. Which for many of us—especially the lower our incomes, the poorer our neighborhoods, the more marginalized our gender and orientation, the darker our skin, and the more healthContinue reading “My Life Is Out of Control, So I’m Trying Goals”

I’m Still Not Here

At 14, I read the entire Bible, front to back. When I attended sleepovers, other kids brought plastic clamshells of eye shadow or bottles of nail polish, clattering in their backpacks like marbles. I brought my leather-bound Bible. I was always the last to fall asleep. As my friends dropped off into unconsciousness and heavyContinue reading “I’m Still Not Here”

Four Reasons to Take a Pandemic Vacation

So here’s the thing. I need a vacation. You probably do, too. But we all know there’s no such thing as a vacation from health problems. Whether it’s chronic migraines, PTSD, or any other long-term health challenge, there’s no getting away from it. Wherever we go, there it is. The pandemic can make a vacationContinue reading “Four Reasons to Take a Pandemic Vacation”

Those 2020 Writing Goals: One Month Follow-Up

So five weeks ago, I made a deal with myself. Write when chronic illness allows me to, but shoot for three to four days a week. And on those three or four days each week, just do what I can. If I can only write for five minutes, then that’s five minutes of jotting downContinue reading “Those 2020 Writing Goals: One Month Follow-Up”

Writing with Chronic Illness

This week I came right up against a wall. Writing can be tough for anybody. Writing a book is even harder. But attempting to write a book with chronic illness? Even Flannery O’Connor said screw it when she was diagnosed with lupus and had to move back home, trading her fabulous life among Manhattan’s literatiContinue reading “Writing with Chronic Illness”

How to Talk to Doctors

Five years ago, I didn’t know the first thing about speaking to doctors. I walked into the clinic knowing that my health was eroding. I’d already had to quit one job, and I worried about my ability to maintain my current position. But I trusted that the medical community had the answer. My doctor wouldContinue reading “How to Talk to Doctors”

The MFA for the Chronically Ill Writer

When I enrolled for my prerequisite language courses in 2013 leading up to my M.Ed., I was headed to grad school for the sake of financial stability. I had served the immigrant and refugee communities for over 16 years as academic support staff across two campuses as well as online. And I loved it. ButContinue reading “The MFA for the Chronically Ill Writer”

I Feel Ashamed of My Chronic Illness

It was the second-to-last assault. Jonathan was my best friend at the time, and when he stepped forward to hug me hours after the assault, with no acknowledgement of or apology for his earlier use of force, I felt the ground sink under my feet. Two giant hands seemed to press down on my skull.Continue reading “I Feel Ashamed of My Chronic Illness”

The Four Stages of Migraine

At the age of 31, I learned that the body is irrevocably tied to others. After violence from two young men, my health rapidly deteriorated. Migraines became more frequent and eventually chronic. Within three years, I had become too disabled to work. Our culture tells us that health and weight signal personal virtue. That “willContinue reading “The Four Stages of Migraine”

Gratitude

It’s been two weeks since the MRI. One and a half weeks since the results: Normal. Normal. Unremarkable. Normal. No edemas. No infarcts. No tumors. My brain is clear. No cancer. Nothing structural that would cause these symptoms. They are exclusively electrochemical, and they will not kill me. I had expected good results would leadContinue reading “Gratitude”