Nine Signs You Have a Bad Doctor: What I Wish I’d Known

As my husband and I learned this February, having a bad doctor can be deadly. First, before we get in too deep, I just want to acknowledge that no doctor is perfect. Everyone makes mistakes, and tragically, even a mistake made in good faith, with the best medical practice, can still result in death. SomeContinue reading “Nine Signs You Have a Bad Doctor: What I Wish I’d Known”

7 Tips When Your Friend Has a Chronic Illness

Maybe this sounds like it should be common sense. People should just know, you say. But what if people weren’t raised well? Like me. What if they’re kind of feral and can be thoughtless and ill-mannered socially? Also me. Or what if someone is only beginning to examine their own ableism and would like to moveContinue reading “7 Tips When Your Friend Has a Chronic Illness”

How to Talk to Doctors

Five years ago, I didn’t know the first thing about speaking to doctors. I walked into the clinic knowing that my health was eroding. I’d already had to quit one job, and I worried about my ability to maintain my current position. But I trusted that the medical community had the answer. My doctor wouldContinue reading “How to Talk to Doctors”

I Feel Ashamed of My Chronic Illness

It was the second-to-last assault. Jonathan was my best friend at the time, and when he stepped forward to hug me hours after the assault, with no acknowledgement of or apology for his earlier use of force, I felt the ground sink under my feet. Two giant hands seemed to press down on my skull.Continue reading “I Feel Ashamed of My Chronic Illness”

Gratitude

It’s been two weeks since the MRI. One and a half weeks since the results: Normal. Normal. Unremarkable. Normal. No edemas. No infarcts. No tumors. My brain is clear. No cancer. Nothing structural that would cause these symptoms. They are exclusively electrochemical, and they will not kill me. I had expected good results would leadContinue reading “Gratitude”