Those 2020 Writing Goals: One Month Follow-Up

So five weeks ago, I made a deal with myself. Write when chronic illness allows me to, but shoot for three to four days a week. And on those three or four days each week, just do what I can. If I can only write for five minutes, then that’s five minutes of jotting downContinue reading “Those 2020 Writing Goals: One Month Follow-Up”

This Word Chronic

I’ve been so angry at people who ask me, “How are the headaches?” and “Feeling better?” “It’s still chronic,” I say flatly. “I was diagnosed 27 years ago. Five years ago, it went from episodic to chronic, and there’s no cure. In the context of chronic migraines with vertigo and brain stem aura, most drugsContinue reading “This Word Chronic”

7 Tips When Your Friend Has a Chronic Illness

Maybe this sounds like it should be common sense. People should just know, you say. But what if people weren’t raised well? Like me. What if they’re kind of feral and can be thoughtless and ill-mannered socially? Also me. Or what if someone is only beginning to examine their own ableism and would like to moveContinue reading “7 Tips When Your Friend Has a Chronic Illness”

Passing Normal: When Your Mother Has Autism

I inherited an odd brain. When the winter sun hits the three o’clock slant and stares me straight in the face, I feel like my eye sockets are blistering–even with my eyelids squeezed shut. The wrong colors set my teeth on edge. Dusky reds and velvet purples soothe me. But whites, blues, yellows, and evenContinue reading “Passing Normal: When Your Mother Has Autism”

A Year of What Matters Most

In 2014, I launched my new year on this blog with a set of goals that proved to be mighty powerful. I wanted to try something that scared me. So I took swimming lessons and joined Toastmasters to hone my public speaking. Check. I wanted to tackle major life goals. I’m now in grad schoolContinue reading “A Year of What Matters Most”

The Limitations of Self

We are each limited by our perceptions of the world. We get only one perspective, one pair of eyes. And imagination, perhaps the only route to being in another’s shoes, is constrained by our own experience and knowledge base. The self is bounded by itself. This can, of course, be very damaging. “Self-absorbed,” as oneContinue reading “The Limitations of Self”